Category: Deep Dives

Research-led articles and awareness pieces from Epilepsy: The Untold Side.

  • Why Can Seizures Look Different Each Time?

    Seizures are often described as stereotyped — meaning they tend to follow a recognisable pattern for that person. But “stereotyped” does not mean every seizure is identical.

    The same seizure network can spread differently

    Seizure symptoms reflect which brain networks are involved and how activity spreads. A focal seizure may remain local on one occasion and spread more widely on another, producing different motor, sensory, behavioural or awareness features.

    One person can have more than one seizure type

    Some people genuinely experience several seizure types. That can make events look dramatically different — for example, one event may involve preserved consciousness while another impairs consciousness or becomes bilateral tonic-clonic.

    Brain state can change the appearance

    Sleep and wakefulness, medication changes, missed doses, illness and other physiological factors can influence seizure threshold and propagation. These factors do not allow someone to predict exactly how a seizure will look, but they can help explain why the pattern is not always identical.

    Witness descriptions can vary too

    Research comparing observer accounts with video-EEG shows that some seizure features are described reliably and others are missed or interpreted differently. Two witnesses may therefore describe the same event differently.

    A major change should still be reviewed

    Variation can be part of epilepsy, but a new seizure pattern, prolonged event, new injury, new loss of awareness or substantial increase in frequency deserves medical review. A significant change should not simply be dismissed as “my seizures are different sometimes”.

    Sources

    Semiology of epileptic seizures — critical review

    ILAE seizure semiology glossary

    Interobserver variability of seizure semiology

    Explore Seizure Types →

  • What Does ‘Silent Seizure’ Actually Mean?

    “Silent seizure” is a phrase people use, but it is not a precise modern seizure type in the ILAE classification. It can mean different things depending on who is speaking.

    Why I personally use the phrase

    In my own case, EEG monitoring recorded four seizures during sleep that I did not know I was having. Looking back, there were small visible signs such as twitching. That is why I personally describe them as my “silent seizures”. It is my shorthand for seizures I was unaware of, not a formal medical classification.

    It may mean a seizure with very little outward sign

    Some focal seizures and absence seizures can be subtle. A person may stare, pause, stop responding, experience an internal sensation or have only a small movement that is easy to miss. To an observer, the seizure may look “silent” even though it has clinical symptoms.

    It can also be used for electrographic-only seizures

    In EEG terminology, an electrographic-only seizure is seizure activity recorded on EEG without an evident clinical sign at the time. ILAE neonatal terminology specifically prefers “electrographic-only” over older phrases such as “clinically silent” or “subclinical”, because absence of an observed sign does not prove that the event has no subjective effect.

    A second seizure on EEG does not automatically tell you what it felt like

    If monitoring records an electrographic seizure that nobody noticed, the recording can establish that an electrical seizure occurred. It cannot by itself prove exactly what the person experienced unless the clinical record, video and EEG are reviewed together.

    Why precise language helps

    Instead of “silent seizure”, it is usually more useful to describe what is known: a focal seizure with subtle signs, an absence seizure, an event noticed only retrospectively, or an electrographic-only seizure. That avoids making all invisible or unobserved seizures sound like one condition.

    Sources

    ILAE — Updated classification of epileptic seizures (2025)

    ILAE — neonatal seizure terminology, including electrographic-only seizures

  • Can Laughter Trigger a Seizure?

    Yes, laughter can be connected with seizures — but there are two different situations that are easy to confuse.

    Gelastic seizures: laughter is the seizure symptom

    In a gelastic seizure, the laughter or giggling is part of the seizure itself. It is often sudden, stereotyped and may not match how the person actually feels. The ILAE describes focal emotional seizures with laughter as characteristic of hypothalamic hamartoma, although they can also arise from frontal or temporal regions.

    In hypothalamic hamartoma, gelastic seizures are often brief and frequent and can be subtle enough to go unrecognised, especially in children.

    Laughter-induced seizures: laughter is the trigger

    This is different. Rare case reports describe laughter-induced reflex seizures, where genuine laughter precipitates seizure activity. Published literature suggests this is extremely uncommon, so repeated seizures after laughing deserve specialist assessment rather than assuming laughter is a common epilepsy trigger.

    Why the distinction matters

    “The person laughed during the seizure” and “laughing caused the seizure” are not the same observation. Timing matters: did laughter begin spontaneously as the first unusual event, or did normal laughter reliably come first and then trigger the seizure?

    Sources

    ILAE EpilepsyDiagnosis.org — Focal emotional seizures

    ILAE EpilepsyDiagnosis.org — Hypothalamic hamartoma seizures

    Laughter-induced seizures — 2024 case report

    Laugh-induced seizure — video-EEG case report

  • Can Loud Music Trigger a Seizure?

    Sometimes — but not in the simple way people often assume. Music can trigger seizures in a rare form of reflex epilepsy called musicogenic epilepsy. That does not mean loud music is a common trigger for everyone with epilepsy.

    Musicogenic epilepsy is real, but rare

    Published reviews describe seizures provoked by specific musical experiences. Triggers can differ greatly between people and may involve a particular song, musical style, voice, instrument, familiarity or emotional response rather than volume alone.

    Many reported musicogenic seizures are focal and have been associated with temporal-lobe networks involved in emotion and memory.

    What about very loud venues?

    For most people with epilepsy, there is not good evidence that sound volume by itself is a universal trigger. In a club or concert, other factors may also be present — flashing lights, poor sleep, stress, alcohol, dehydration or missed medication — making it difficult to identify one cause from a single event.

    Patterns matter more than assumptions

    If seizures repeatedly occur in connection with the same sound, music or setting, keeping a detailed diary can help. Note the music, volume, lighting, sleep, medication timing, alcohol, stress and what happened before the seizure. Repeated patterns are more useful to an epilepsy specialist than assuming that “noise caused it”.

    Sources

    Musicogenic epilepsy — Handbooks in Clinical Neurology review

    Musicogenic seizures — review

    Music and epilepsy — critical review

  • Why Can Seizure Recovery Take Hours or Days?

    A seizure may last seconds or minutes, but recovery does not necessarily end when the visible seizure stops. The postictal state can involve exhaustion, confusion, headache, memory problems, weakness, language difficulty and changes in behaviour.

    Recovery is a process, not an on/off switch

    The postictal period lasts until the person returns towards their usual neurological baseline. Research shows wide variation between people and between seizure types. In a systematic review, many postictal manifestations lasted less than 24 hours, while some cognitive and psychiatric effects could persist longer.

    What can make recovery longer?

    Recovery may be influenced by seizure duration and type, whether a focal seizure spread to become bilateral tonic-clonic, repeated seizures, sleep deprivation, injury, medication effects, age and the underlying epilepsy. There is no single recovery time that applies to everyone.

    Awake does not always mean recovered

    A person may open their eyes, talk or walk before attention and memory are fully back to normal. That distinction matters because witnesses can assume the emergency has passed while the person is still confused, vulnerable to falls or unable to make reliable decisions.

    When longer recovery needs medical review

    If recovery is much longer than usual, the person does not regain their expected level of consciousness, there are repeated seizures, serious injury, breathing problems or new neurological symptoms, urgent medical assessment may be needed.

    Sources

    Systematic review — Signs and symptoms of the postictal period

    Clinical features of the postictal state

    Read Postictal Recovery →

  • Why Can Memory Disappear Around a Seizure?

    Memory loss around a seizure can be one of the most unsettling parts of epilepsy. A person may remember the warning but not the seizure, remember waking up but not what happened afterwards, or lose pieces of time before and after the event.

    Memory depends on brain networks that seizures can disrupt

    The hippocampus and connected temporal-lobe networks are central to forming new memories. Seizures arising from or spreading through these networks can interfere with encoding and retrieval, which helps explain why some people have amnesia for the event itself or for the surrounding period.

    The postictal period can add another layer

    After a seizure, attention, language and memory may remain impaired while the brain recovers. A person can appear awake yet still fail to lay down reliable memories. That means witnesses may remember more of the event than the person who experienced it.

    It is rarely only one factor

    Longer-term memory difficulties in epilepsy can also be influenced by seizure frequency, sleep disruption, mood, underlying brain changes and antiseizure medicines. Not every memory problem is caused by the last seizure.

    Why video or written records can help

    If someone cannot remember an event, a seizure diary, witness account or clinically appropriate video can help reconstruct what happened. That information can be useful when discussing seizure type, injuries or recovery with the epilepsy team.

    Sources

    Systematic review — Signs and symptoms of the postictal period

    Read Memory & Cognition →

  • Why Can Behaviour Change After a Seizure?

    After a seizure, the brain may not return to its usual state immediately. The postictal period can involve confusion, disorientation, fear, reduced responsiveness, agitation, unusual behaviour or difficulty recognising people and surroundings.

    The seizure may be over before behaviour is back to normal

    The postictal state is the period between the end of a seizure and return towards the person’s usual neurological baseline. A systematic review identified many physical, cognitive and behavioural postictal effects. Most reported manifestations lasted less than 24 hours, although some cognitive or psychiatric effects can last longer.

    Why confusion can look like resistance

    A person who does not understand where they are or why someone is touching them may pull away, wander, shout or defend themselves. That behaviour can be a response to confusion and fear rather than a deliberate choice.

    What about aggression?

    Postictal aggression has been described, but it is not the normal outcome of epilepsy and people with epilepsy should not be stereotyped as violent. In the 2019 systematic review, subacute postictal aggression was among the least frequently reported postictal manifestations.

    When someone is confused or agitated after a seizure, crowding, arguing with them or unnecessary restraint can make the situation harder. The priority is to reduce immediate danger, use calm simple communication and allow recovery while seeking medical help when behaviour or recovery is unusually prolonged or dangerous.

    A sudden new pattern deserves attention

    If post-seizure behaviour changes significantly from a person’s usual pattern, lasts much longer than expected, or includes new severe psychiatric symptoms, it should be discussed with the epilepsy team. Not every behavioural change after an event is automatically postictal.

    Sources

    Systematic review — Signs and symptoms of the postictal period in epilepsy

    Clinical features of the postictal state

    Read the full Postictal Recovery guide →

  • Can You Be Conscious During a Seizure?

    Yes. A person can be conscious during an epileptic seizure. Epilepsy does not automatically mean loss of consciousness.

    What the 2025 ILAE classification says

    The International League Against Epilepsy now uses consciousness as a classifier for focal seizures. It is assessed through both awareness and responsiveness. A focal seizure may therefore occur with consciousness preserved or impaired.

    In a focal seizure with preserved consciousness, the person may remain aware of what is happening. They may experience unusual sensations, smells, tastes, emotions, visual changes, tingling, jerking, déjà vu or other symptoms while still knowing they are having an event.

    Being unable to respond is not always the same as being unaware

    Consciousness is more complicated than a simple awake/unconscious switch. The ILAE operational definition considers both awareness and responsiveness. A person may later report awareness of parts of an event even when their ability to respond was reduced.

    Why witnesses can misunderstand this

    People often expect a seizure to involve collapse and complete unconsciousness. That can lead to focal aware seizures being dismissed as panic, imagination or “not a real seizure”. Some focal seizures have few outward signs at all.

    The answer is not the same for every seizure

    A person may have more than one seizure type. Consciousness can be preserved in one seizure and impaired in another. A focal seizure can also spread and become a focal-to-bilateral tonic-clonic seizure, with loss of consciousness.

    Sources

    ILAE — Updated classification of epileptic seizures (2025)

    Epilepsy Society — Focal aware seizures

  • Timing a seizure: when do you start and stop the clock?

    Timing a seizure sounds simple, but three different periods often get mixed together: an aura or warning, the active seizure, and the recovery period afterwards.

    What should the first-aid timer measure?

    For first aid, note when the seizure starts and when it finishes. NHS guidance specifically tells witnesses to record the start and finish time. The recovery period afterwards should be noted separately rather than added to the seizure duration.

    For a convulsive seizure, start timing when the seizure is clearly underway — for example, when the person becomes unresponsive, falls, stiffens or begins convulsing. Do not wait for the first jerk if a tonic phase has already begun. Stop the seizure-duration clock when the active seizure activity ends. Confusion, sleepiness, headache, agitation or a slow return to normal afterwards are part of recovery and are useful to record, but they are not simply added onto the seizure time.

    What about an aura?

    An aura is not always a separate warning before a seizure. In epilepsy, what someone calls an aura can itself be a focal seizure. So if a person has a reliable, recognised aura that clearly forms the beginning of their usual seizure sequence, record when it began and tell clinicians.

    But do not turn every vague feeling before an event into extra seizure minutes, and do not include the whole postictal recovery period. A clearer record separates the sequence: aura or warning → observable seizure activity → recovery. The 2025 ILAE classification also emphasises describing seizures by their chronological sequence of signs and symptoms.

    A clearer way to write it down

    Instead of writing “20-minute seizure”, a witness might record:

    • 14:02 — person reports their usual rising feeling or aura
    • 14:03 — becomes unresponsive and stiff
    • 14:04 — jerking begins
    • 14:06 — active seizure activity stops
    • 14:06–14:22 — confused and sleepy during recovery

    That gives clinicians much more useful information because it distinguishes the seizure itself from what happened before and afterwards.

    When should 999 be called?

    NHS guidance says to call 999 for an ambulance if it is the person’s first seizure, the seizure lasts longer than usual for them, it lasts more than 5 minutes when their usual duration is not known, they do not regain full consciousness or have repeated seizures without regaining consciousness, they are seriously injured, or they have difficulty breathing afterwards. Follow the person’s individual care plan where one exists.

    Basic first aid during a convulsive seizure

    • Protect them from injury and move nearby hazards away.
    • Cushion their head if they are on the ground.
    • Loosen tight clothing around the neck.
    • Do not restrain them.
    • Do not put anything in their mouth.
    • After convulsions stop, turn them onto their side if appropriate and stay with them until they recover.

    Sources

    NHS — What to do if someone has a seizure (fit)
    International League Against Epilepsy — Updated classification of epileptic seizures (2025)

    This article provides general first-aid information and does not replace an individual emergency care plan or medical advice.